Psychosomatics
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Psychosomatics 50:263-269, May-June 2009
doi: 10.1176/appi.psy.50.3.263
© 2009 Academy of Psychosomatic Medicine
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Emotional and Behavioral Changes in Parents of Children Affected by Hemolytic-Uremic Syndrome Associated With Verocytotoxin-Producing Escherichia Coli: A Qualitative Analysis

Kevin G.J. Pollock, Ph.D., M.P.H., Elaine Duncan, Ph.D., and John M. Cowden, M.B., Ch.B., F.F.P.H.

Received February 26, 2007; revised June 25, 2007; accepted June 27, 2007. From Health Protection Scotland, Clifton House, Clifton Place, Glasgow, UK; and the Division of Psychology, Glasgow Caledonian University, Glasgow, UK. Send correspondence and reprint requests to Kevin Pollock, Ph.D., M.P.H., Health Protection Scotland, Clifton House, Clifton Place, Glasgow, G3 7LN, Scotland. e-mail: Kevin.Pollock{at}hps.scot.nhs.uk
© 2009 The Academy of Psychosomatic Medicine

BACKGROUND: The long-term clinical outcome for childrenaffected by hemolytic uremic syndrome associated with verocytotoxin-producing Escherichia coli (VTEC–HUS) is well documented, but the parental experience is not. OBJECTIVE: The authors investigated the effects of the critical-care hospitalization for this condition on well-being of patients’ families. METHOD: A group of 30 parents completed a free-response format survey when their child presented to the hospital; 19 of this cohort completed a 1-year follow-up. RESULTS: Content analysis demonstrated that this cohort of parents experienced long-term emotional distress and substantive disruption to family and daily life. DISCUSSION: These results corroborate anecdotal clinical observations. The authors suggest future research initiatives and best practices to reduce parental distress.







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